NAACCR Item #3917: Primary Sclerosing Cholangitis
| Item # | Length | Source of Standard | Year Implemented | Version Implemented | Year Retired | Version Retired | 
|---|---|---|---|---|---|---|
| 3917 | 1 | NAACCR | 2018 | 18 | 
            NAACCR XML:
            
                
                    Tumor.primarySclerosingCholangitis
                
            
        
        
        Description
            Primary sclerosing cholangitis denotes a chronic autoimmune inflammation of the bile ducts that leads to scar formation and narrowing of the ducts over time. It is a prognostic factor for intrahepatic bile duct cancer.
        Rationale
                Primary Sclerosing Cholangitis is a Registry Data Collection Variable in AJCC. This data item was previously collected for Intrahepatic Bile Duct, SSF# 11.
            Codes
                | 0 | PSC not identified/not present | 
| 1 | PSC present | 
| 8 | Not applicable: Information not collected for this case (If this information is required by your standard setter, use of code 8 may result in an edit error.) | 
| 9 | Not documented in medical record PSC not assessed or unknown if assessed | 
Code Notes
                Each Site-Specific Data Item (SSDI) applies only to selected primary sites, histologies, and years of diagnosis. Depending on applicability and standard-setter requirements, SSDIs may be left blank.