NAACCR Item #3917: Primary Sclerosing Cholangitis

Item # Length Source of Standard Year Implemented Version Implemented Year Retired Version Retired
3,917 1 NAACCR 2018 18

NAACCR XML: Tumor.primarySclerosingCholangitis


Primary sclerosing cholangitis denotes a chronic autoimmune inflammation of the bile ducts that leads to scar formation and narrowing of the ducts over time. It is a prognostic factor for intrahepatic bile duct cancer.


Primary Sclerosing Cholangitis is a Registry Data Collection Variable in AJCC. This data item was previously collected for Intrahepatic Bile Duct, SSF# 11.


0PSC not identified/not present
1PSC present
8Not applicable: Information not collected for this case (If this information is required by your standard setter, use of code 8 may result in an edit error.)
9Not documented in medical record PSC not assessed or unknown if assessed

Each Site-Specific Data Item (SSDI) applies only to selected primary sites, histologies, and years of diagnosis. Depending on applicability and standard-setter requirements, SSDIs may be left blank.